Clinical trial start date: 8/20/07
- Numb legs.
- Severe burning in both legs from knees down.
- Unable to walk the grocery store (used the electric cart)
- Walked with a cane.
- Unable to run, hop, jump.
- Severe panic attacks that necessitated use of Xanax as needed.
- Spasticity in arms and legs.
- Extreme fatigue coupled with insomnia.
(there may have been more symptoms but I forget).
At one year anniversary:
Change in above symptoms:
- My legs aren't numb, except occasionally if I overdo it (the numbness comes back slightly but goes away with rest).
- Same thing with the burning -- only upon overdoing it.
- I can walk the entire grocery store and even PASS other slow pokes while doing so.
- I do NOT use the electric carts or the blue parking spaces.
- I don't know where my cane is.
- I can run across the yard, I can hop on both feet or either foot, I can JUMP!
- I haven't had any Xanax in at least 11 months.
- I'm no longer depressed. (I never took any medication for it either).
- My arms and legs still have some occasional spasticity.
- I sometimes take naps in the afternoon -- getting fatigued if I eat too many carbs at lunch.
- The insomnia thing I still have some trouble with. Some nights I fall right to sleep, other nights I go to sleep and wake up a few hours later, and some nights I don't fall asleep until the wee hours of the morning. It all depends. I adjust my naps accordingly.
- Thank God the bladder and bowel issues are over.
Anyhow, that's the difference between now and then.
Just last night when I was over at my Mom's house, we were all reminiscing about what I was like back then and their perceptions of the changes are even more dramatic than my own.
This FTY720 Fingolimod trial has been instrumental in my breathtaking progress toward wellness, in my opinion.
By coincidence, I got this link in my alert email today about Fingolimod:
Stu's Views Article on Fingolimod
Also, I was diagnosed in 1999 and have had at least 2 relapses per year since then. From 2005-2007 I had relapses every 3 months, with a recovery period of 3 months. I was basically suffering all the time.
It has now been (drum roll please)
SEVENTEEN MONTHS WITHOUT A RELAPSE!!
Needless to say, I am a true believer.
BTW, Cheese, this isn't the funny post I promised. It's coming tho. I have a draft I'm working on.
Anyhow, thanks to all my readers -- old and new -- for following along, and this concludes the "Because You Asked" section of my blogging day.
I will now return to my self-absorbed musings that try to be funny.