The gloves are off. I'm warning all my MS friends, and especially those in search of information regarding Gilenya / Fingolimod / FTY720.
See my most recent post for the thread I found on healthboards(dot)com and my reply I had to post here as it was not showing up on their site. I was careful yesterday not to mention the site, but no more.
I got an email today saying there had been a reply to the conversation so I excitedly went to see if my post had finally "taken". But it did not. It was as if the 30 minutes of careful, thoughtful, informative reply never even happened. The reply to the thread was from the original poster who, as you may have guessed, was shocked by the PML information this idiot had warned her of with their misinformation.
I assumed my browser had just timed out trying to post the reply, so I quickly logged in so I could provide the original poster with correct info.
Here is what I saw (click to enlarge):
Really?? My account was suspended due to asking for links or criticizing someone? I ask you, dear reader, to go judge my response (in the immediately preceding post here: http://gilenya.blogspot.com/2011/08/setting-record-straight.html) and see if you think it was unjustly critical. And furthermore, I don't think asking for links to references that back up the garbage they are trying to spew is unreasonable.
To be fair, perhaps it was an automated process that suspended my account and perhaps a live moderator might be more understanding. However, my patience with their board and the idiots who are free to post their BS has worn down to a frayed thread. I'm done with it.
READER BEWARE! This is not the only message board or "group" out there that allows members to post misinformation being passed off as some kind of "fact" that they know to be true.
At least I will tell you when something I am saying is my own stupid opinion. And if I believe something to be factual I will at least do a little research and provide you with a link to what I've found so you can use your own noggin and judge for yourself.
Now I REALLY feel that a primer about how to research info for MSers is in order. Give me a few days to compose it.