Friday, November 18, 2011

Come learn about Gilenya!

As a lot of you know I just went through training to become a Gilenya Guide (patient speaker). This means I will be traveling around telling my MS story and Gilenya experience at different events where Gilenya is presented. There will be a physician who gives a slide presentation to groups of MSers and their family, friends and caregivers along with a real live patient on Gilenya (me) and a nurse provided by Novartis to moderate the meetings. Question and answer sessions follow. This is a great way to get informed about this new drug and be able to have face time with a doctor who will be able to answer all your questions.

I just got my first speaking event! It will be in Athens, Georgia on December 2, 2011 at  Etienne Brasserie. It will begin at 11 a.m.

I am so excited and if you want to come out and get informed, I'd love to see you there!

Just so you know, I wear many "hats" in my life and my blog is totally separate from this speaking experience with Novartis, so if you do come, this blog won't be the topic -- nor will it even be mentioned. It's not the point of the event.

I'm just so happy to be able to share with a greater audience this way and reach out to MSers who might be struggling with their current therapies or may be feeling like they have reached their wit's end. I just want to let you know that there IS hope and things CAN get better. They sure did for me.

While everyone's experience is different, granted, and Gilenya may not work for you, you have to take charge and advocate for yourself since it's your life you're living. Know what I mean? There's nobody who knows your struggles better than you do yourself. So no matter what you choose to do, keep having that dialog with your doctor and keep trying until you find something that works for you.

Trust me. Read my blog. Been there, done that.

Friday, December 2nd, 2011, 11:00 AM, ET
An Overview of Treatment with GILENYA
Etienne Brasserie - Athens, GA
Presented by Thomas Snyder, MD

If you aren't near Athens, Georgia, there are events going on all over the country. You can find an event in your area by visitng the Gilenya website here:  http://www.gilenya.com/info/support/upcoming-events.jsp

In a nutshell:  Just don't give up.

{{{ Hugs to all of you }}}

because MS SUCKS!

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