I'm on an email list for an MS group spearheaded by my neurologist at Shands Jacksonville, and today I got an email with a link to a local news story about the clinical trial.
It was interesting to see another patient who's going through the same thing as I am and even better to see that he's receiving great results.
Here's a link to the story. I tried to embed the video but I'm no geek and kept getting errors. At any rate, my neuro (who's also my hero) is the doc in the video.
Click here for the video and story.
My story of being a hypochondriac, an MS patient, and a guinea pig. NOTE: After 16 years on Fingolimod, I'm starting my self-designed study to taper off the drug while avoiding the now well-documented "rebound relapse" phenomenon. I'll be writing about my journey on SubStack and you can find it here: https://farewellfingolimod.substack.com/
Thanks for posting this story..it really makes me feel good about the study. I should start my testing phase to see if I qualify for the placebo vs. fingolimod study on Jan 9...keeping my fingers crossed!
ReplyDeleteSo glad to read your blog and see that you are doing well!
Keep up the writing..it helps me a lot to see how it is going for you.
Happy New Year!
Melissa