Friday, February 19, 2010

Oh and I forgot this one...


In referring to that huge jug of castor oil my goader sent in the last message, they followed up with this image.

In response to that, (and I WILL respond right here because no doubt you are reading this, you-know-who-you-are, and will see it) I post this picture:



Honestly, my Personal Goader (a personal trainer for the constipated blogger) is so funny themselves, they should be the one writing the blog.

I get my material from everyday life and life's not been funny lately.

If I think hard enough and try to remember some of the stuff that's happened since last month, I bet there have been lots of things I could have turned from disaster/tragedy into a humorous "Life In These United States" moment.

If I didn't laugh I'd be crying all the time no doubt.

Oops! I Did It Again!

I said I wasn't going to slack off and let the blog go stale, but here I see I did it again. Doh!

I have a friend, (who shall remain anonymous) who has been prodding me, pleading with me and downright GOADING me to write again and I just have to share some of the little comments they've made these past few weeks...

Thinking my blog STINKS because it's sitting here wasting away, they sent me this picture...


Then, in another message, I was made aware by visual imagery that things needed to be freshened up...

I love the mouse in the picture, who I assume represents me, kind of sticking with my theme of being a lab rat.

When I wrote back in self defense that I was suffering from Writer's Block and that nothing would come out... I got this:


EVERYBODY'S A COMEDIAN!
(or in this case, commodian)

So, there are no more excuses and I am going to return to the world of posting in order to post, whether or not I have anything informative or intelligent to say (it's never stopped me before, just read the rest of my blog).

Anyhow, I hope I haven't been dropped from everyone's blog roll as being DOA.

I still have a few more things to say...

Is my microphone on? I'm just warming up, and I'll be here all week.

Be sure to tip your waiters and waitresses.

For now it's closing time and you don't have to go home, you just have to get the heck out of here.

Night all.

Jeri

PS, It's good to see you again. I've missed you.

Thursday, January 21, 2010

Mixed Emotions

I know I haven't blogged in a while but life has been driving me crazy since my major source of income dried up.

Just a few minutes ago, I walked by the TV where my mother was watching Fox News and I heard the words "MS" and "new pill". This perked me right up so I grabbed the remote, punched up the volume and sat back to soak it all in.

They didn't mention any names but said that 2 new pills were competing for first ever FDA approved ORAL treatment for MS. A doctor showed an MRI and described in grade school terminology the basics of the disease and what the pills do to combat it.

They spoke of a "news release today" that I was unaware of and so I sat down here to google.

My heart lept into my throat as I did a Google News search to find out that Novartis has filed for FDA approval of Fingolimod / FTY720 yesterday, January 20, 2010 -- exactly 2 years and 5 months to the day since I swallowed my first pill.

This is great news, however I am terrified by it. The clock is ticking on my free ride and I know it's silly because it's not like the FDA is going to just rubber stamp this today when it hits the big guy's desk, but it's a huge reminder that this trial is not going to last forever and I'm not going to get this stuff for free forever either.

I have GOT to get that letter done (the one I drafted and then set aside to go over again a few times but haven't yet gotten to) so I can send it off to the CEO of Novartis and ask him to help a guinea pig who's down on her luck out with a lifetime supply of Fingo.

I just don't want it to sound too whiny but ever time I read it, it sounds all "woe is me" or is that "WHOA!"?

Anyhow, when I get it written, I was toying with the idea of posting it for all to see here on the blog, but don't know how that would effect the results....

Any ideas you readers (if anyone still reads this) have for getting Novartis' attention and persuading them to give me drugs, please post them as a comment -- I'm all ears!

This has been a wonderful journey for me. I don't want to revert back to relapsing every 3 months and being chronically under the dictatorship of so many horrible symptoms. I would rather die than go back there.

When Novartis yanks their Magic Carpet of Fingolimod out from under my feet, I just know I'm going to fall into that dark, black, bottomless, horrifying pit of MS again.

I'm scared. Someone tell me how to keep that carpet, if you know a way!

Here goes nothing. I'll be on the edge of my seat following right along as we wait and see what the FDA has to say.

Cross your fingers, would ya?