tag:blogger.com,1999:blog-7776703918286670187.post749004196308368222..comments2023-05-05T04:37:13.282-07:00Comments on Fingolimod and Me: Increased chance of upper respiratory infectionUnknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7776703918286670187.post-90421609458900029582008-02-15T07:36:00.000-08:002008-02-15T07:36:00.000-08:00Hi JI agree with you that if I had to choose betwe...Hi J<br><br>I agree with you that if I had to choose between an ms relapse and a head-cold, I'd choose the head-cold every time.<br><br>I myself have been on the trials for a year now. In that time, if memory serves, I have only had one head-cold/ flu. It was a highly contagious one that the whole family got.<br><br>On the other hand, I have had two mini-relapses in that time that I treated. The first one doesn't really count, as I already had the relapse going into the trials. The second one wasn't severe, but as it was affecting sensation in my hands, I panicked and went for some steroid treatment.<br><br>The trials I am on have three arms: placebo, Fingolimod 1.25mg and Fingolimod 0.5mg. I am starting to suspect that I may be on the 0.5mg dosage. I've had no side-effects whatsoever, and while I have had a major reduction in relapses, I did still get one.<br><br>I'm finding it really interesting reading about your experiences.<br><br>You know what's my favourite? Popping that beautiful little pink capsule in the mornings. Viva Fingolimod!Maggiehttp://www.blogger.com/profile/13285330625048385773noreply@blogger.comtag:blogger.com,1999:blog-7776703918286670187.post-28009052745430752482008-02-15T08:08:00.000-08:002008-02-15T08:08:00.000-08:00Hi Maggie! Good to see you again!I'm in the tr...Hi Maggie! Good to see you again!<br><br>I'm in the trial with .5 vs 1.25 vs Avonex and I'm starting to suspect I'm on the higher dose of the real thing (the 1.25) due to the head colds. Either that or I'm just having a bad year for being sick as a coincidence.<br><br>It's been 9 months (now that I count on my fingers) since my last relapse. The time is really flying by. I feel so normal it's scary.<br><br>I just tell myself that the morning stiffness and aches and pains are ones that any 47 year old is gonna feel. I agree...Viva Fingolimod!TickledPinkhttp://www.blogger.com/profile/05961503858715547705noreply@blogger.comtag:blogger.com,1999:blog-7776703918286670187.post-62831579612660557712008-02-16T00:12:00.000-08:002008-02-16T00:12:00.000-08:00My very first attack came a couple weeks after a d...My very first attack came a couple weeks after a doozie of a stomach flu. And since then any time I get a cold, within a few weeks I have an attack...until this funky Fingolimod stuff.<br><br>You must have the rare Backwards MS or SM. LOLTickledPinkhttp://www.blogger.com/profile/05961503858715547705noreply@blogger.com