tag:blogger.com,1999:blog-7776703918286670187.post1762290159872591251..comments2023-05-05T04:37:13.282-07:00Comments on Fingolimod and Me: So soon?? Will the party be over?Unknownnoreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7776703918286670187.post-18540848479196915892009-03-06T17:11:00.000-08:002009-03-06T17:11:00.000-08:00Well, my 2-year trial ends in July, but the hospit...Well, my 2-year trial ends in July, but the hospital is already talking about extending the trial. We might still be useful to Novartis as long-term study subjects, so I would not say that certification means that they start sending out invoices. <br><br>(I don't have health insurance either, and though Ireland does have a national health service, such as it is, I don't think they would fund the full cost of FTY720. Considering the number of MRIs, & staff hours etc. that this trial is costing Novartis, I don't expect FTY720 to be cheap.)brian thttp://www.blogger.com/profile/11816630081635941429noreply@blogger.comtag:blogger.com,1999:blog-7776703918286670187.post-82927598594881635422009-03-07T18:59:00.000-08:002009-03-07T18:59:00.000-08:00Don't you worry I will do what it takes to mak...Don't you worry I will do what it takes to make sure you get what you need. I'm so inspired by you and how far you have come - the hope you give to others.<br><br>You know I'm not a fan of the drug companies but if they have something that helps you then I'm here to help you.<br><br>Love and hugs!Daniellehttp://www.blogger.com/profile/09351926680528670968noreply@blogger.comtag:blogger.com,1999:blog-7776703918286670187.post-9578394167432431482009-03-08T08:36:00.000-07:002009-03-08T08:36:00.000-07:00Shoot, my trial just BEGINS next week! Surely, on...Shoot, my trial just BEGINS next week! Surely, ongoing trials wouldn't just stop, would they? I'll have to ask my study nurse what she thinks.<br><br>Here's a thought: just because Novartis applies to get the drug to market, that's not something that happens in a week or anything, does it? <br><br>Another uninsured person here...Anne Phttp://www.blogger.com/profile/07630895464447581306noreply@blogger.comtag:blogger.com,1999:blog-7776703918286670187.post-48666253730605186002009-03-08T08:55:00.000-07:002009-03-08T08:55:00.000-07:00@ Anne: I'm sure they wouldn't just halt t...@ Anne: I'm sure they wouldn't just halt the ongoing trials. I happen to be in an extension phase of my trial so I'm not sure what happens in my case.<br><br>Also, you are correct. FDA approval doesn't happen over night. That can drag on for years as well, I think.<br><br>I'm sorry for all the people waiting on this pill when I selfishly say I hope it takes a while.TickledPinkhttp://www.blogger.com/profile/05961503858715547705noreply@blogger.comtag:blogger.com,1999:blog-7776703918286670187.post-66062524822302911882009-03-09T20:02:00.000-07:002009-03-09T20:02:00.000-07:00I could not agree with you more! I'm hoping th...I could not agree with you more! I'm hoping that the approvals move along a bit slowly so I can stay on the drug for as long as possible!Kimhttp://www.blogger.com/profile/06617846584381862711noreply@blogger.comtag:blogger.com,1999:blog-7776703918286670187.post-8054603253880825562009-03-10T12:23:00.000-07:002009-03-10T12:23:00.000-07:00Took my first dose TODAY! I'm sure it'll t...Took my first dose TODAY! I'm sure it'll take years to get approved... the FDA is in no hurry to help Novartis make money, are they?pUNKrOCKfairyhttp://www.blogger.com/profile/13486715100955603014noreply@blogger.com